Dutch Psychiatrists Warn Canada Not to Expand MAID for Mental Illness
Dutch psychiatrists urge Canada not to expand MAID to mental illness, citing sharp rises in requests and concerns over physician-performed suicide.
Category : Rare Diseases
Guelph Family Seeks Support for Son's Rare Speech Disorder Therapy
A Guelph family is calling for increased support as their son faces expensive therapy for a rare speech disorder, highlighting the financial and emotional challenges of accessing specialized care.
Ontario Denies Funding for Woman's Tissue-Destroying Disease
A northern Ontario woman, after consulting over 30 specialists, was denied provincial funding for a mysterious tissue-destroying condition, forcing her to spend $30,000 on U.S. medical answers.
Ontario Denies Funding, Woman Pays $30K for U.S. Disease Answers
A Northern Ontario woman, after consulting over 30 specialists locally, was denied provincial funding and paid $30,000 for diagnosis of a mysterious tissue-destroying condition in the United States.
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Mounted Police Surprise Boy with Rare Disease in Ottawa
Four-year-old Jack Godda, battling adrenoleukodystrophy, received a special visit from Ottawa Police's Mounted Unit with Clydesdale horses Rio and Deputy, bringing joy during his health journey.
Regina Girl with Rare Disease Named Champion for Sick Kids
Ivy, a five-year-old from Regina battling a rare illness, has been selected as the 2026 representative for Saskatchewan's pediatric patients, highlighting the resilience of children facing medical challenges.
Saskatoon Toddler's Rare Disease Sparks Fundraising Push
The parents of a two-and-a-half-year-old Saskatoon boy are launching a fundraising campaign to support research into his rare genetic condition, highlighting the challenges of rare diseases.
Saskatoon Man Finds Relief from Rare Sunlight Skin Disorder
Kris Kinar, diagnosed with erythropoietic protoporphyria, describes lifelong pain from sunlight exposure and his breakthrough treatment through a U.S. clinical trial that changed his life.
Rare Disease Day Highlights Hope for London Families
London families celebrate Rare Disease Day with events highlighting support and research, as global news covers health, politics, and sports developments.
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Sister's Leap Day Suggestion and the Legacy of Love It Inspired
A poignant story of a sister's rare cancer battle, a heartbreaking conversation on Rare Disease Day, and the enduring legacy of a blood donation movement that continues to save lives.
B.C. Teen First Cured of Rare Disease via Gene Editing
An 18-year-old British Columbia student is the first person globally cured of chronic granulomatous disease through groundbreaking gene editing treatment, marking a medical milestone.
Montreal Officer Honors Father Lost to Rare Cancer
A Montreal police officer pays tribute to his father, a volunteer firefighter who died from bile duct cancer, highlighting the impact of rare diseases on families and communities.
Medical Mystery: Girl's Body Shrinks, Doctors Seek Diagnosis
A six-year-old girl is baffling medical experts as her body inexplicably shrinks, with doctors struggling to diagnose the rare condition. The case highlights challenges in pediatric health and rare diseases.
Cheryl Petruk's Journey from Caregiver to Patient Advocacy Leader
After her husband's rare cancer diagnosis, Cheryl Petruk became a powerful patient advocate, founding the Canadian MPN Network and Heal Canada to support thousands. Discover her inspiring story.
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B.C. woman pleads for government to cover MS drug
A British Columbia woman is calling on the provincial government to fund a new multiple sclerosis drug. Her plea highlights the critical gap in coverage for patients.
Sask. woman avoids MAID after Glenn Beck's help
Jolene Van Alstine, a 45-year-old Saskatchewan mother with a rare disease, was scheduled for MAID on Jan. 7, 2026. American commentator Glenn Beck intervened, securing U.S. medical consultations and offering hope.
Windsor man's public plea for A+ kidney donor
Dwight Hesman of Windsor, Ont., makes a desperate public appeal for a life-saving A+ kidney donor. His story highlights the critical need for organ donation in Canada.
Stem cell donor drive launched to save Calgary mother
A Calgary-raised mother of two in Regina fights leukemia. A stem cell donor drive is underway to find a match and save her life. Learn how you can help.
No fixes for B.C.'s rare disease drug program after 5 months
Five months after Premier David Eby called for change, B.C.'s costly rare disease drug program remains unreformed. The review continues, leaving families in limbo.
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Health Canada Approves Drug for Rare Disease
Health Canada has granted approval for a new pharmaceutical treatment targeting a rare disease, offering hope for patients. Learn about the regulatory decision and its impact.
Grey's Anatomy Star Eric Dane Shares ALS Update
Actor Eric Dane discusses life with ALS, his new role as an ambassador for I AM ALS, and the urgent need for continued research funding as a key law nears expiration.
Manitoba approves rare disease drug coverage
Jeremy Bray wins drug coverage for rare condition after provincial announcement. Read how this decision impacts rare disease patients across Manitoba.
Winnipeg man denied $300k treatment coverage
Jeremy Bray fights for life-changing spinal muscular atrophy treatment after Manitoba denies coverage. Learn about his journey and healthcare challenges.
Manitoba family seeks coverage for rare disease medication
A Winnipeg family battles for provincial coverage of expensive medication risdiplam to treat a rare genetic disease. Learn how you can support their cause.
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Mom Survives Rare Disease by Managing Her Medical Care
Taylor Coffman shares how advocating for herself in hospital after rare pregnancy-triggered illness saved her life. Learn how patient empowerment can change outcomes.
Jesse Jackson Hospitalized with Rare Neurological Condition
Civil rights leader Rev. Jesse Jackson has been hospitalized while managing progressive supranuclear palsy, a rare neurodegenerative disorder. Learn about his health journey and family support.
Kelowna mother's race against time for liver transplant
A Kelowna mother faces a desperate wait for a life-saving liver transplant as BC's healthcare system struggles with organ availability. Her story highlights the urgent need for organ donors.
Service Dog Transforms Life of Woman With Rare Condition
A West Island woman living with POTS finds freedom and independence through her life-changing service dog, Rowan. Discover how this remarkable partnership is rewriting the rules of living with invisible disabilities.
Science Battles Immunity's Dark Side: Disease of 1000 Faces
Canadian researchers are making groundbreaking discoveries about autoimmune diseases, particularly lupus, revealing how our immune system turns against us and what new treatments could revolutionize patient care.
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Manitoba Approves Life-Saving Drug for Dying Boy
A Steinbach family celebrates as the Manitoba government approves coverage for a costly medication that could save their son's life after months of uncertainty and desperate appeals.
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