A northern Ontario woman, after consulting over 30 specialists, was denied provincial funding for a mysterious tissue-destroying condition, forcing her to spend $30,000 on U.S. medical answers.
A Northern Ontario woman, after consulting over 30 specialists locally, was denied provincial funding and paid $30,000 for diagnosis of a mysterious tissue-destroying condition in the United States.
Four-year-old Jack Godda, battling adrenoleukodystrophy, received a special visit from Ottawa Police's Mounted Unit with Clydesdale horses Rio and Deputy, bringing joy during his health journey.
Ivy, a five-year-old from Regina battling a rare illness, has been selected as the 2026 representative for Saskatchewan's pediatric patients, highlighting the resilience of children facing medical challenges.
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The parents of a two-and-a-half-year-old Saskatoon boy are launching a fundraising campaign to support research into his rare genetic condition, highlighting the challenges of rare diseases.
Kris Kinar, diagnosed with erythropoietic protoporphyria, describes lifelong pain from sunlight exposure and his breakthrough treatment through a U.S. clinical trial that changed his life.
London families celebrate Rare Disease Day with events highlighting support and research, as global news covers health, politics, and sports developments.
A poignant story of a sister's rare cancer battle, a heartbreaking conversation on Rare Disease Day, and the enduring legacy of a blood donation movement that continues to save lives.
An 18-year-old British Columbia student is the first person globally cured of chronic granulomatous disease through groundbreaking gene editing treatment, marking a medical milestone.
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A Montreal police officer pays tribute to his father, a volunteer firefighter who died from bile duct cancer, highlighting the impact of rare diseases on families and communities.
A six-year-old girl is baffling medical experts as her body inexplicably shrinks, with doctors struggling to diagnose the rare condition. The case highlights challenges in pediatric health and rare diseases.
After her husband's rare cancer diagnosis, Cheryl Petruk became a powerful patient advocate, founding the Canadian MPN Network and Heal Canada to support thousands. Discover her inspiring story.
A British Columbia woman is calling on the provincial government to fund a new multiple sclerosis drug. Her plea highlights the critical gap in coverage for patients.
Jolene Van Alstine, a 45-year-old Saskatchewan mother with a rare disease, was scheduled for MAID on Jan. 7, 2026. American commentator Glenn Beck intervened, securing U.S. medical consultations and offering hope.
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Dwight Hesman of Windsor, Ont., makes a desperate public appeal for a life-saving A+ kidney donor. His story highlights the critical need for organ donation in Canada.
A Calgary-raised mother of two in Regina fights leukemia. A stem cell donor drive is underway to find a match and save her life. Learn how you can help.
Five months after Premier David Eby called for change, B.C.'s costly rare disease drug program remains unreformed. The review continues, leaving families in limbo.
Health Canada has granted approval for a new pharmaceutical treatment targeting a rare disease, offering hope for patients. Learn about the regulatory decision and its impact.
Actor Eric Dane discusses life with ALS, his new role as an ambassador for I AM ALS, and the urgent need for continued research funding as a key law nears expiration.
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Jeremy Bray wins drug coverage for rare condition after provincial announcement. Read how this decision impacts rare disease patients across Manitoba.
Jeremy Bray fights for life-changing spinal muscular atrophy treatment after Manitoba denies coverage. Learn about his journey and healthcare challenges.
A Winnipeg family battles for provincial coverage of expensive medication risdiplam to treat a rare genetic disease. Learn how you can support their cause.
Taylor Coffman shares how advocating for herself in hospital after rare pregnancy-triggered illness saved her life. Learn how patient empowerment can change outcomes.
Civil rights leader Rev. Jesse Jackson has been hospitalized while managing progressive supranuclear palsy, a rare neurodegenerative disorder. Learn about his health journey and family support.
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A Kelowna mother faces a desperate wait for a life-saving liver transplant as BC's healthcare system struggles with organ availability. Her story highlights the urgent need for organ donors.
A West Island woman living with POTS finds freedom and independence through her life-changing service dog, Rowan. Discover how this remarkable partnership is rewriting the rules of living with invisible disabilities.
Canadian researchers are making groundbreaking discoveries about autoimmune diseases, particularly lupus, revealing how our immune system turns against us and what new treatments could revolutionize patient care.
A Steinbach family celebrates as the Manitoba government approves coverage for a costly medication that could save their son's life after months of uncertainty and desperate appeals.
Discover how Atlantic Canada is raising awareness for acromegaly, a rare hormonal disorder that often takes years to diagnose. Learn about symptoms, diagnosis challenges, and patient stories from the region.
