A new study led by a University of Calgary medical student challenges the long-held belief that patients with postural orthostatic tachycardia syndrome (POTS) always recover fully. The research, published Tuesday, reveals that while POTS cannot be cured, symptoms can be managed effectively with treatment.
Understanding POTS
POTS is a disorder of the autonomic nervous system that primarily affects women of childbearing age. Common symptoms include rapid heartbeat, dizziness, fatigue, and nausea when standing up. The condition can significantly impact daily life, making even simple tasks challenging.
Key Findings from the Study
The study, co-authored by medical student Kate Bourne and Dr. Satish Raj, a professor of cardiac sciences at the University of Calgary, surveyed 44 patients at Vanderbilt University who had been monitored for decades. The results showed that almost no patients experienced a complete recovery, but just under half reported improvement compared to when they were first diagnosed, largely due to treatment.
"We learned two things. One, almost no one gets totally better," said Dr. Raj. "But just under half of the patients reported that they were improved than they were when they first presented, I think largely because of treatment."
Personal Journey with POTS
Kate Bourne was diagnosed with POTS at age 24, though her symptoms began at 12. She experienced gastrointestinal issues and severe fatigue, sometimes unable to get out of bed. Her symptoms fluctuated, leading to a delayed diagnosis. "One of the challenges I think for me was that I had periods of time where I felt better," she said. Those periods were always temporary.
Before her diagnosis, POTS forced Bourne to take an extra year of high school and eight years to complete her undergraduate degree. Now at 36, her symptoms are well-controlled with treatment. "I've become quite good at noticing my symptoms and I have strategies to get on that right away and not let it get worse," she said.
Treatment Options
POTS is often treated with medication, lifestyle changes, or a combination of both. Lifestyle modifications include increasing fluid and salt intake, exercise, sleep adjustments, and wearing compression garments, according to Harvard Medical School.
Impact on Canadians
The University of Calgary estimates that POTS affects up to 450,000 Canadians. Bourne is pursuing a PhD in POTS with the goal of becoming a clinician or researcher to help others with the condition.
