Brianna Voss knows first-hand the impact Huntington's Disease can have on a family. After her brother was diagnosed with the rare genetic disorder, she decided to take action. Voss walked 200 kilometers from Yarmouth to Halifax, Nova Scotia, to raise awareness and funds for research into the disease.
A Personal Mission
Huntington's Disease is a progressive brain disorder that affects movement, cognition, and mental health. It is inherited and currently has no cure. Voss's brother received his diagnosis several months ago, prompting her to organize the walk. She hoped to shine a light on the challenges faced by families living with the condition.
The journey took Voss several days, with her walking along highways and through towns. She was joined by family members and supporters for parts of the route. Along the way, she shared her story on social media, raising over $10,000 for the Huntington Society of Canada.
Community Support
Local communities rallied behind Voss. In Yarmouth, a send-off event was held with well-wishers. In Halifax, she was greeted by a small crowd at the finish line. Voss expressed gratitude for the support, emphasizing that every dollar brings researchers closer to a treatment.
The walk also aimed to educate the public about the disease. Many people are unaware of Huntington's, Voss noted, and early diagnosis and support are critical. She hopes her efforts will encourage others to get involved in rare disease advocacy.
Voss plans to continue fundraising and speaking about Huntington's Disease. She believes that personal stories can drive change and that even a single person's determination can make a difference.
