Karissa Renaud was 25 years old when she first experienced severe pelvic pain that led to frequent emergency room visits at Ottawa hospitals. Doctors could not identify the cause, prescribing antidepressants and birth control, while friends labeled her a hypochondriac. The pain spread to her legs, back, and ribs, leaving her physically and emotionally exhausted.
In 2024, a referral to a gynecologist finally suggested endometriosis as the likely cause, but a formal diagnosis requires invasive surgery. Without it, Renaud cannot access workplace benefits. Now 34, she is joining other Ottawa women to push for the House of Commons to recognize endometriosis as a disability.
The Impact of Endometriosis
Endometriosis affects about 1 in 10 Canadian women, as well as two-spirited, gender-diverse, and transgender individuals. Despite misconceptions, it is not solely a reproductive disease; it can spread outside the reproductive system and fuse organs. In rare cases, it can be fatal, as seen with Kenyan radio host Jahmby Koikai, who died in 2024 from a lung collapse due to endometriosis.
Lack of Diagnosis and Support
Renaud notes that the only definitive diagnosis is through surgery, which doctors often avoid. This leaves many women frustrated and without insurance coverage. Canada currently lacks a national action plan for this common disease, unlike Australia, France, the UK, and Denmark.
Call for Political Action
Dr. Sony Singh, head of obstetrics, gynecology, and newborn care at The Ottawa Hospital, emphasizes the need for political leadership. He calls for provincial and federal recognition of endometriosis as a priority. A petition with 25,000 signatures, tabled by Green Party MP Elizabeth May on July 8, aims to have the disease recognized as a disability under federal and provincial programs.
Renaud and others hope this will lead to better funding, research, and support for those living with endometriosis.
